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July 19, 2006

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October 26, 2006 - MHANYS Annual Awards Dinner
This annual evening event allows us to recognize the accomplishments
of Mental Health Association and our other colleagues in the
mental health community throughout the state.

October 27, 2006
– MHANYS 2006 Fall Conference
Speakers and workshops will take place from 9 a.m. to 4 p.m.

Conference will feature bestselling author of
Lincoln’s Melancholy,
Joshua Wolf Shenk

Events Will Take Place at the Wolf Road Marriott Hotel, Albany, NY

CONTENTS:

- FIVE RESIDENTS OF BROOKLYN MANOR ADULT HOME DIE IN VAN ACCIDENT by Glenn Liebman

- EFFORT TO ‘BOOT THE SHU’ NEEDS LETTERS OF SUPPORT, SIGNED PETITIONS, AND STRONG SHOWING IN ALBANY ON JULY 25TH

- MENTAL HEALTH HOUSING WAITING LIST LEGISLATION EXPECTED AT GOVERNOR’S DESK AUGUST 4TH – LETTERS OF SUPPORT NEEDED

- GARY O’BRIEN CONFIRMED AS CHAIR OF THE NYS COMMISSION ON QUALITY OF CARE AND ADVOCACY FOR PERSONS WITH DISABILITIES by Glenn Liebman
- BURDEN OF PROOF LEGISLATION SENT TO GOVERNOR

- IN THE NEWS

FIVE RESIDENTS OF BROOKLYN MANOR ADULT HOME DIE IN VAN ACCIDENT: by Glenn Liebman

Like everyone else, I was saddened to read about the horrific accident that claimed the lives of five adult home residents from Brooklyn Manor. In recent years, adult homes that house people with psychiatric disabilities have been much more in the news than they have in the past. There have also been greater efforts both in the advocacy community through the New York State Coalition for Adult Home Reform (NYSCAHR), state government and the legislature to help reform adult homes.

When I ran the adult home initiatives program at the Department of Health, my goal was to work with the state agencies to engender the notion of recovery to individuals in adult homes. So many people in these homes have been ignored for so many years that their ‘quality of life’ was measured by what was for supper as opposed to “how can I get a job” or “how can I go back to school.”

The sea change for adult home residents must be two fold---A) A system of care must be created that rewards people in adult homes who are integrated in the community through school, work, improvement of ADL skills and other recovery oriented programs; B) Peer Programs must become more prevalent in adult homes. People do better when they see how peers in similar circumstance have been able to overcome hurdles and live productively in the community. In addition, services like those offered by the Coalition for Institutionalized and Aged Disabled and Mental Hygiene Legal Services must be well funded so that residents of homes feel empowered and safe from intimidation.

Greater capacity for housing models for adult home residents must become available. Individuals who choose to live in different settings should have those options available to them.

The most important part of my job at the Department of Health was to go to adult homes and hear what the residents had to say. We spoke to hundreds of residents in these forums and they wanted what we all want---the ability to live productive lives, have a social network and feel safe.

As we mourn the lives of these five individuals, I can’t help but think of those hundreds of people that we spoke to who want to desperately improve their lives. As advocates with a multitude of issues to work on, we must continue to prioritize those individuals in adult homes whose lives will dramatically improve with advocacy targeted to their ‘quality of life.”

Articles on this tragedy follow below in the In The News section.

EFFORT TO ‘BOOT THE SHU’ NEEDS LETTERS OF SUPPORT, SIGNED PETITIONS, AND STRONG SHOWING IN ALBANY ON JULY 25TH: Now that the Senate has joined the Assembly in passing the legislation that would ban the use of solitary confinement for prisoners with psychiatric disabilities, the next step for the bill is to be sent to the Governor’s office, which is expected to take place on August 4th.

Letters in support of this legislation must be sent to the Governor to demonstrate the strong grassroots support for the effort to ‘Boot the SHU’. Following below is a draft letter that can be changed or edited to your liking, that we urge you to send to the Governor, as well as fax to his office at 518-474-1513.

In addition, Raymond Ortiz, with the Urban Justice Center, is collecting signatures on petitions which will be delivered to Governor Pataki to urge him to sign this legislation. The petition is attached to this e-mail. Completed petitions can be faxed to Ray at (212) 533-4598.

Lastly, advocates for ending the use of solitary confinement for prisoners with mental health needs will converge in Albany on July 25th to tell the Governor to ‘Boot the SHU’. All are welcome to attend, and buses from NYC will be available for those who want to go to Albany. Buses leave from Howie T. Harp at 6:30 a.m. on July 25th. Reservations are available by contacting Jennifer (JJ) Parish at 646-602-5644 or jparish@urbanjustice.org. A light breakfast and lunch will be served.

Following below is the draft letter we encourage everyone to send to the Governor.

Governor George E. Pataki
Executive Chamber
State Capitol
Albany, N.Y. 12224

Dear Governor Pataki:

I am writing to strongly urge you to sign A.3926 / S.2207 into law, to provide appropriate treatment and programming for inmates with psychiatric disabilities who would otherwise be confined in disciplinary housing.

Under the current system, inmates who do not conform to prison rules, often times resulting from actions caused by their mental condition, are placed in disciplinary confinement. This isolation frequently leads to further mental deterioration and eventual hospitalization of inmates with mental health needs. Such confinement consists of spending 23 hours per day in a barren, concrete cell experiencing sensory deprivation, social isolation and enforced idleness. These conditions are harmful to anyone’s mental health and devastating to people who already have a psychiatric disability.

This legislation will provide positive changes not only in the treatment and housing provided to inmates with psychiatric disabilities, but will significantly improve correctional facility operations, as well. This will be achieved through specialized mental health training for correction officers, to enable them to safely and effectively interact with and identify inmates with mental health needs. In addition, by providing proper treatment to inmates with mental health needs, rather than placing them in an environment that exacerbates their illness, this will lead to lower rates of recidivism, prison sentences that are not lengthened due to behavioral or disciplinary issues, and will significantly save the state money.

A.3926 / S.2207 represents a ‘win-win’ for New York State because it would significantly improve the treatment provided to inmates with psychiatric disabilities and result in a safer and less costly correctional system.

MENTAL HEALTH HOUSING WAITING LIST LEGISLATION EXPECTED AT GOVERNOR’S DESK AUGUST 4TH – LETTERS OF SUPPORT NEEDED: As is the case with the legislation to ‘Boot The SHU’, the legislation which would establish a waiting list of individuals with psychiatric disabilities in need of housing has also passed both houses of the legislature. This bill is also expected to be sent to the Governor for his consideration on August 4th. However, in recent meetings with the Governor’s staff, advocates have heard that very few letters of support have been received on this bill. This makes the prospects for this bill’s enactment into law much more difficult. We need to produce a number of letters that send a strong message that this bill is a priority to all of us in the mental health community. We strongly encourage everyone to write a letter to the Governor to urge him to sign this bill into law.

Following is a draft letter which can be adapted as needed, which we hope everyone will send to the Governor at the address below, and fax to his office at 518-474-1513.

Governor George E. Pataki
Executive Chamber
State Capitol
Albany, N.Y. 12224

Dear Governor Pataki:

I am writing to urge you to sign S.3653-a/A.2895-a into law to establish a community housing waiting list for New Yorkers with psychiatric disabilities.

Currently, there is no central, statewide list of individuals with psychiatric disabilities in need of housing. This population of people includes homeless individuals with psychiatric issues, youth with mental illness aging out of the foster care system, individuals discharged from the psychiatric centers, people with psychiatric disabilities who choose to move out of adult homes, people with forensics history and people living with psychiatric disabilities living with aging family members.

New York State has a solid record of developing housing for people with mental health needs, demonstrated most recently by the establishment of the New York/New York III agreement, which will provide for over 5500 additional housing units in New York City for individuals with mental illness at risk of homelessness. While these efforts, and the efforts of individual not-for-profits and other governmental units, to address the widely recognized need for additional housing are laudable, a more comprehensive approach is necessary to appropriately identify this need. Without such information, accurate planning to address this housing need is little more than an educated guess, rather than being based on factual numbers.

New York was the trend-setter years ago when it created a waiting list for individuals with developmental disabilities, which justified the establishment of the highly regarded and nationally replicated New York State Creating Alternatives in Residential Environments & Services (NYS-CARES) program for people with developmental disabilities. We believe that individuals with psychiatric disabilities deserve the same opportunities to find appropriate housing that have been afforded to those with developmental disabilities and mental retardation.

Without a waiting list, New York State will be unable to accurately plan to meet this need, and be forced to continue to fund more expensive forms of housing, rather than finding properly identifying the need and dedicating resources appropriately. Therefore, we urge you to sign S.3653-a/A.2895-a into law and establish the long-overdue community housing waiting list for New Yorkers with psychiatric disabilities.


GARY O’BRIEN CONFIRMED AS CHAIR OF THE NYS COMMISSION ON QUALITY OF CARE AND ADVOCACY FOR PERSONS WITH DISABILITIES: by Glenn Liebman

In the hopes that it would not get lost in the chaos of the end of session Mental Health Updates, we held off on including news of Senate’s action in late June to confirm Gary O’Brien for another term as the Chair of the NYS Commission on Quality of Care and Advocacy for Persons with Disabilities.

Under Chairman O’Brien’s tenure, CQCAPC has been an outstanding voice on behalf of New Yorkers with disabilities in pointing to areas where work is needed to improve the lives of those living with disabilities. Perhaps most prominent is CQCAPD’s long-standing advocacy for adult home residents living with mental health needs, dating back years before it became highly publicized by a series of exposes in the New York Times.

In my capacity, both inside and outside of government, I have worked very closely with Gary and he is a man of great conviction and compassion – we very much look forward to working with him in the years to come.

Following below is the press release announcing Gary O’Brien’s confirmation:

THREE MEMBERS OF STATE OVERSIGHT AGENCY CONFIRMED;
GARY O'BRIEN RE-DESIGNATED AS CHAIRMAN

Governor George E. Pataki's re-nomination of Gary O'Brien, of Latham, as a member of the NYS Commission on Quality of Care and Advocacy for Persons with Disabilities, has been confirmed by the State Senate for a term to run through 2009. The Governor also re-designated O'Brien as chairman of the Commission. Confirmed for their first terms as members of the Commission were Bruce G. Blower, of Huntington, and Patricia Okoniewski, of Fulton.

"Gary O'Brien has sustained a deep and enduring commitment to assisting our state's citizens with disabilities as they live lives to the fullest extent possible," Governor Pataki said. "I know Bruce Blower and Patricia Okoniewski will continue their previously demonstrated commitment and dedication to further advocacy for all New Yorkers with disabilities."

In 1998, O'Brien was named to chair the Commission on Quality of Care for the Mentally Disabled, which in April of 2005 merged with the State Office of Advocate for Persons with Disabilities to become a single agency responsible for oversight and advocacy on behalf of individuals with disabilities. Prior to that, O'Brien was a Carmelite priest for over 20 years, including a term as provincial superior. He holds a B.A. from Marquette University; M.A.'s from the Washington Theological Union and the University of Notre Dame; and a doctorate from the Catholic University of America.

Gary O'Brien said, "I am grateful to Governor Pataki for his continued confidence in me and his unwavering support for the mission of the Commission. I look forward to working with the Chamber, my colleagues in other state agencies, the Legislature, and New Yorkers with disabilities in the years ahead."

Bruce Blower, a disabled veteran, has been director of the Suffolk County Office for the Handicapped for 25 years, was a Governor's appointee to the State Hospital Review and Planning Council, a former chair of the State Education Department's Office of Vocational and Educational Services for Individuals with Disabilities' State Rehabilitation Council, and previously chaired the Advisory Council for the former State Office of Advocate for Persons with Disabilities.

Patricia Okoniewski is a certified family nurse practitioner, the past president of the NYS Association of Boards of Visitors, and a longtime member of the Board of Visitors of Hutchings Psychiatric Center.

The NYS Commission on Quality of Care and Advocacy for Persons with Disabilities is an independent oversight responsible for monitoring and advocating for quality of care and individual rights in facilities and programming for New York State's citizens with disabilities. Its office is located at 401 State Street, Schenectady, New York.

BURDEN OF PROOF LEGISLATION SENT TO GOVERNOR: MHANYS has lent its support to the legislation designed to reinstate the burden of proof in impartial special education hearings on the school districts, and urge you to sign this legislation into law. This legislation, explained in more detail in the letter below, has also passed both houses of the legislature and was delivered to the Governor on July 14th. Following below is the letter MHANYS wrote to Governor Pataki to urge him to sign this legislation into law. We urge that you consider writing your own letter or using ours as a template, faxing it to Governor Pataki at 518-474-1513 and sending it to him at the Capitol address.

July 11, 2006

Governor George E. Pataki
State Capitol
Albany, NY 12224

Dear Governor Pataki:

On behalf of the Mental Health Association in New York State, Inc., I am writing in support of legislation (A.11965 / S.8354) that would reinstate the burden of proof in impartial special education hearings on the school districts, and urge you to sign this legislation into law.

Ever since the inception of special education 31 years ago, school districts have had to bear the burden of proof in impartial special education hearings. This was done so an attempt to level the playing field, given the overwhelming advantage school districts have over parents in legal, informational, personnel and financial resources.

However, due to the Supreme Court’s decision in Shaffer v. Weast (2005), the burden of proof in such hearings will now be borne by the parents of children with special needs instead of the school district. This legislation is intended to return the burden of proof to the school district to compensate for the disproportionate advantage they have over parents with little resources, financial or otherwise. While many states have recognized the problem that arises from this court decision, nine have already taken action to enact law to return the burden to school districts.

A.11965 / S.8354 would restore New York’s sound policy of placing the burden of proof on school districts and we urge to sign this bill into law to protect NY’s most vulnerable families and their children.

Sincerely,

Glenn Liebman
CEO


IN THE NEWS:

Timothy's Law —er, Agreement. By Laurie Nikolski
The Journal News Editorial, July 9, 2006

They won. Sort of. I think.

We're well into July, and most state lawmakers have long since scattered to the winds, or at least dryer climates. For people with mental illness and emotional disabilities, and their advocates, the Albany crowd left behind hope. And bewilderment.

It was high drama to which only a few were privy. At the 13th hour of the legislative session late in June, state legislators came to agreement on probably the top health-rights issue in New York: insurance parity for mental illness. After years of resistance and bowing to business interests, the GOP-dominate state Senate agreed with the Democratic-led Assembly that medical coverage and treatment for people with mental disorders should be on a par with physical ailments. Sort of. I think.

News stories, and rumors, had see-sawed until the bitter end: Compromise, maybe. Nope, dead bill. No, flicker of hope. Wait — could it be? Compromise bill. Just not in time for real passage. The session ended, but not to worry, lawmakers assured us: They'll be back later this year, sure to pass Timothy's Law Light. Outgoing Gov. George Pataki may, just may, sign it.

Lawmakers' pride ran deep. Advocates — who had run a stubborn grass-roots campaign to convince them that securing mental-health coverage was both the practical and moral thing to do — cheered the deal as major progress. Majority Leader Joseph L. Bruno, who had stood in the way for so long, crowed in his official Senate press release: "Mental illness can result in tragedy if it is not properly treated, however many families do not have access to the proper treatment. This agreement would provide parity in coverage and would help people get the treatment they need.''

Um. Sort of.

Thomas O'Clair went home to Schenectady exhausted. Timothy's Law is named after his son, a 12-year-old boy who took his life in 2001. His parents had used up their insurance benefits to try to get him help, eventually giving up custody of the boy to the state so he could get better treatment via Medicaid. Even that desperate tactic didn't save his life. So ever since, Thomas O'Clair has been fighting alongside groups like the Mental Health Association in New York State for a parity law. This year, they turned up the heat under state senators, all of whom are up for re-election this fall.

What, exactly, was won? After all, as Gannett News Service reported in the waning days of the session, "Business groups and insurance companies have mounted strong opposition to Timothy's Law. The Conference of Blue Cross and Blue Shield Plans has said passage of the bill could mean long-term, possibly lifelong, unlimited treatment.''

Did those gosh-darn scheming mentally ill people actually get long-term, unlimited treatment? No. If you can make heads or tales of the bill that didn't officially pass yet, it seems they may get out of insurance policies

• Hospitalization for mental illness for up to 30 days a year;

• Up to 20 visits annually with a psychotherapist;

• Lower copays for some treatments.

Not to worry: The powerful business sector won, too. After all, The Business Council of New York State had warned legislators on its Web site of dire consequences if Timothy's Law passed as envisioned. "The Business Council respectfully opposes (its) enactment . . . because increasing the cost of insurance benefits is not healthy for businesses or families.''

More ominously, the council's legislative memo concludes with a nudge in lawmakers' ribs: "This legislation will be included as one of the scoring measurements . . . (in the) Council's annual assessment of legislators' action on key issues of concern to the state's business community.''

In other words, our business people vote more than your mentally ill ones. And don't you forget it.

So the Senate got clever. The bill — sorry, make that agreement — calls for the state to cover any extra cost for businesses in New York that have 50 or fewer employees. The estimate for that coverage: around $50 million a year.

Yet the creativity didn't stop there. For a while lawmakers tossed around the idea of letting insurance companies decide what types of mental illness was covered. This is like letting teens decide which chores they would like to do.

Then legislators took the matter in hand. They — not doctors, not therapists, not researchers — defined what Timothy's Agreement would cover: "biologically based mental illness,'' Bruno's office wrote, including "Schizophrenia/physchotic (sic) disorders, Major Depression, Bipolar Disorder, Delusional Disorders, Panic Disorder, Obsessive Compulsive Disorder, Bulimia, Anorexia and Binge Eating.''

Not covered, the press release failed to point out: treatment for addictions. Elected officials apparently are sure that binge eating is "biologically based,'' but drug and alcohol addictions are not? Never mind that the federal government estimates that there are more than 10 million Americans who have "co-occurring'' mental illness and substance-abuse disorders. And some of them may live in New York. It will be entertaining to see how treatment providers bill those patients.

Finally, lest anyone think they went too far, the legislators built in extra protections The would-be law will sunset after two years, during which time two state departments, Insurance and Mental Health, will study the "effectiveness and impact'' of mental-health parity here and elsewhere.

Rest assured, though: State lawmakers did not cave on one compromise that had floated through the chambers: not covering children. See, if they had done that, then they would have to rename Timothy's Law after a grown-up. Or themselves.


Decriminalizing Mental Illness
The New York Times Editorial, July 16, 2006

The institutions that once cared for people with severe mental illnesses were largely closed down during the deinstitutionalization movement that swept the country in the 1960’s and 70’s. Now mentally ill people who commit crimes or create public disturbances often go straight to jail, where they receive little treatment and where their symptoms usually get worse.

Inmates who suffer from delusions or hallucinations, and who break prison rules because they cannot follow simple instructions, find themselves in even deeper trouble, landing in “disciplinary lockdown” — solitary confinement in many cases. There they deteriorate rapidly, sometimes mutilating themselves or even taking their own lives.

Moreover, mentally ill inmates are easily victimized by other inmates and goaded into fights and rule-breaking. Since disruptive behavior can draw extended sentences, mentally-ill prisoners may end up serving more time — and hard time at that — than nondisabled prisoners who have committed comparable crimes. One report found that inmates who suffered from serious mental illnesses spent six and half times longer in disciplinary units than other inmates generally.

New York State has been complicit in this kind of suffering for far too long. But the State Legislature has at last passed a law, which Gov. George E. Pataki should sign, that would mandate better care for mentally ill inmates and prevent corrections officials from banishing those who suffer from serious mental illnesses to solitary confinement.

The need for a new approach was underscored in a startling report by the Correctional Association of New York. The study found that the mentally ill prison population had grown at three times the rate of the general prison population. It also found that prison officials were routinely using solitary confinement to control mentally ill prisoners.

At the time of the study, nearly a quarter of the inmates in disciplinary confinement — held in cramped cells 23 hours a day — were mentally ill. More than 40 percent reported they had tried suicide and more than a third reported self-mutilation.

The suffering does not end there. After completing their sentences, the mentally ill are typically dumped onto the streets. Lacking access to drugs or treatment that could control their symptoms, they create more disturbances, posing a danger to the community as well as to themselves, and are swept right back through the revolving door into prison.

In addition to outlawing solitary confinement for those with serious mental illnesses, the law would require the prison system to expand residential mental health treatment programs and provide better training for corrections staff, and would give mental health professionals more influence in deciding treatment options.

This will clearly cost money. But the program would pay for itself by shortening the stay for mentally ill inmates and by making it possible for more of them to stay out of prison once released. And it will reduce disruption inside the prisons, making them safer for both staff and inmates.


Five Die, Trapped in a Burning Van. By Richard Perez-Pena
The New York Times, July 13, 2006

Five residents of one of the state’s most troubled adult homes for the mentally ill burned to death yesterday afternoon when a van carrying them back to the home slammed into a tree and exploded in flames in a remote corner of Queens, the authorities and witnesses said.

None of the passengers in the van, including four other residents who were injured, were wearing seat belts, the authorities said, and a review of the driver’s records shows that his license was suspended. The nine passengers were residents of Brooklyn Manor, which New York State’s Department of Health had tried repeatedly to shut down or take over after a long string of abuses.

Heading north on Cross Bay Boulevard shortly after 3 p.m. yesterday in a desolate stretch of scrub and trees surrounded by the marshes of Jamaica Bay, the van veered off the road and crashed so hard into the trunk of a tree that the engine was forced back into the passenger compartment. The Queens district attorney, Richard A. Brown, who went to the scene, said the van had been going at “a high rate of speed.” The posted speed limit is 40 miles per hour.

The van immediately erupted into a fireball, flames leaping as high as the top of a nearby telephone pole, and the driver tumbled out with a large flap of burnt skin hanging from his arm, witnesses said. Two drivers and a bicyclist stopped to help and saw a passenger inside, “pounding on the door for his dear life,” pleading to be let out, said one of the drivers, Michael Hickey.

After opening the door and letting two passengers out, the rescuers found the rest in a pile of bodies, thrown forward, entangled with one another and the wreckage that encased them. Mr. Hickey said he and the other passers-by pulled a very obese man from atop a small woman whose head was wedged between pieces of metal. They then freed the woman and pulled her out, discovering that her leg was broken, Mr. Hickey said.

“The fire had engulfed the entire van” by then, he said. “It was just building and building and building. My hair was getting burned.”

They could see — but could not reach — others farther back in the van who were apparently trying to escape, he said. “They were just grabbing and making movements,” saying things that were unintelligible, he said. “They were being burned alive. I could tell they were conscious because they were moving around.”

William Volpe, who came upon the scene driving a New York City Transit bus, said that one van passenger, appearing relatively unhurt, stammered, “A car cut us off and we hit the tree.”

Mr. Volpe said, “I saw the bodies in there cooking.”

The fire burned so hot that afterward, much of the van was a sooty, black mass.

Law enforcement officials and Brooklyn Manor residents identified the five people pronounced dead at the scene of the accident as Jose Alvarez, 55; Miguel Cruz, 56; Mario Gonzalez, 58; William Smith, 69; and James Lawson, 79. The survivors were Jean Hastik, 60, who was taken to the burn unit at NewYork-Presbyterian/Weill Cornell hospital in Manhattan; Carl Harkins, 44, and Jose Prieto, 56, who were taken to Mary Immaculate Hospital in Queens; and Sheldon Wilson, 41, who was taken to Jamaica Hospital Medical Center in Queens.

The van was operated by Instant Ambulette Inc., of Inwood, N.Y., according to officials at Peninsula Hospital Center in Far Rockaway, which had hired the company.

Law enforcement officials identified the driver as Guy Thelemaque, 55. He was listed in stable condition last night at NewYork-Presbyterian/Weill Cornell hospital. Information on the conditions of other survivors was unavailable last night.

Mr. Thelemaque had a commercial license to drive one class of vehicle and a permit for another class, but both had been suspended, according to State Department of Motor Vehicles records. Those records showed that he had had 11 suspensions or citations over the past three years, most recently a suspension on June 26 for failure to appear in court to answer a summons.

“We are still investigating whether this is just a tragic accident or something that involves some criminality,” said Mr. Brown, the district attorney.

Joe DiMura, a spokesman for the State Department of Health, said it would be investigating the circumstances of the accident with other state and local agencies. He said it was not clear what authority the department might have over the ambulette company. But Instant Ambulette does a great deal of business that is billed to Medicaid, well over $1 million a year, according to state records, and the Department of Health generally does oversee and regulate Medicaid service providers.

Efforts to reach Instant Ambulette and its owners by phone last night were unsuccessful.

The passengers were returning to Brooklyn Manor after spending about six hours at Peninsula Hospital Center, where they go daily for medical monitoring, recreation and counseling, according to officials at both institutions.

The Brooklyn Manor Home for Adults, a 216-bed home on Pitkin Avenue in East New York, is one of several dozen homes for the mentally ill in the city that have been established since the 1970’s, when the state began reducing the population of its psychiatric hospitals. Conditions in many of the homes were routinely so bad that a few years ago, the state promised reforms and greater oversight.

Brooklyn Manor has long been known as one of the worst homes, according to records and state officials. Over the years, its operators have been cited for a number of violations and abuses that included lack of heat, swarming flies, staff shortages, failures to provide medical aid and employee assaults on patients. Last year, a fire killed a resident in his bed.

The adult home industry in general and many related businesses have often been accused by regulators and advocates for the mentally ill of abusing both the residents and the Medicaid program. A few years ago, a home in Queens and a doctor were found to have arranged unnecessary operations for residents in order to bill Medicaid.

Before any details of yesterday’s crash were made public, Tanya Kessler, adult home project director at the Coalition of Institutionalized Aged and Disabled, voiced concerns about ambulette companies. “In some homes, we’ve heard a lot of complaints about the van services speeding, not having seat belts, not keeping appointments,” she said.

The state has also come in for criticism as not policing the adult homes and related services adequately. For years, the Department of Health tried unsuccessfully either to close Brooklyn Manor, or to force out its owner, Benito Fernandez, who is married to a former state senator, Nellie Santiago. That Mr. Fernandez prevailed in court showed how ineffectual the state was in regulating the homes, advocates said.

On July 1, Leon Hofman took over operation of Brooklyn Manor from Mr. Fernandez, who still owns the building. A few years ago, Mr. Hofman took over one of the most notorious homes at the state’s urging, and conditions there have improved.

“The tragic irony is that these people who died, good things were in the offing for them with these new operators,” said Harvey Rosenthal, director of the New York Association of Psychiatric Rehabilitation Services. “Hofman really is one of the better operators.”

Mr. Hofman said yesterday that policies at the home were being reviewed. “We will be making a lot of changes there, and I am absolutely confident that we will make the place better.”

Of the accident, he said, “The only thing I can tell you is that we are very saddened with the loss of life and we are, at this point, in the fact-finding stages.”

Reporting for this article was contributed by Michael Amon, Kareem Fahim, Ann Farmer, Kate Hammer, Corey Kilgannon, Michael Luo and Colin Moynihan.


Those They Lost: The Extrovert, the Loner, the Conversationalist, a Joker and ‘Pops’. By Cara Buckley and Kate Hammer
The New York Times, July 13, 2006

The news passed from resident to resident, room to room, through the dreary, fluorescent-lighted hallways of the Brooklyn Manor Home for Adults. Five residents who had gone out on a routine day trip were not coming back, and four more had been hospitalized after being injured.

Days at Brooklyn Manor bleed into each other, indistinct, residents said. Many residents are heavily medicated for psychiatric ills, health officials said. But for all the monotony and routine that defines life at the home, residents provided glimpses late yesterday of the unique people who were killed when their van crashed on the way back from a hospital.

There was William Smith, 69, who threw himself into activities and programs. He was known as a friendly, cheerful presence at the home, a well-liked man with a steady, gentle smile.

There was Miguel Cruz, 56, known for his chattiness and a penchant for cigars.

There was Jose Alvarez, 55, a deeply private man who spent much of his time standing outside the building by himself, smoking cigarettes. “He was kind of a lonely guy,” said Victor Diaz, another resident.

Mario Gonzalez, 58, developed a reputation as a resident joker, the in-house funny man bent on cracking other people up.

James Lawson, 79, was the old man of the place, the one people called “Pops.”

Residents also provided distinct impressions of the four who were injured.

Jean Hastik, 60, is known for her politeness and sweetness — and her appetite for food and cigarettes.

Jose Prieto, 56, carries a Bible wherever he goes. He is also sometimes despairing, a friend said, and frequently grumbles about the way residents are treated in the home.

Carl Harkins, 44, is a burly man known for his deep fondness for his Game Boy, as well as his great admiration for sitcoms from the 1970’s, especially “Chico and the Man’’ and “Sanford and Son.”

Sheldon Wilson, 41, has a booming voice that thunders through the home’s halls, fellow residents said. He loves wrestling and collects wrestling magazines.

Day trips are coveted by people who live at Brooklyn Manor, its residents said, because they break up the monotony.

Brooklyn Manor residents who went to the Adult Day Health Care Center at Peninsula Hospital Center in Far Rockaway had been referred there by their doctors or social workers, according to Liz Sulik, Peninsula Hospital’s director of external affairs. Diabetics would get their blood tested. Some people underwent counseling, or learned exercises or were taught healthy eating habits, Ms. Sulik said. The program runs every day, and some people had been going for 12 years, she said.

“There’s socializing, mingling, people share experiences,” Ms. Sulik said. “It’s not just people sitting around playing cards.”

At first, when the van carrying residents from Peninsula did not show up, administrators at Brooklyn Manor assumed it was merely late. Then television crews began arriving outside the home, descending on residents who ventured from the building. Some people cried at the news, others were silent, shocked.

“Many people will feel the loss,’’ said Mr. Diaz, the resident. “Usually death is a natural thing.”

Brooklyn Manor has long been seen as one of the most troubled adult homes in the city, with a long list of violations, such as resident abuse, lack of heating and infestations of flies.

“There’s been a lot of ups and downs there,’’ said Tanya Kessler, a project director with the Coalition of Institutionalized Aged and Disabled. “A lot of downs, honestly.”

Tales of Troubled Lives That Van Crash Cut Short. By Cara Buckley and Kate Hammer
The New York Times, July 14, 2006

The lives of most residents at the Brooklyn Manor Home for Adults follow sorrowful trajectories. They arrive from homeless shelters, prisons or, most often, psychiatric hospitals. Some are visited by loved ones, others are long forgotten. Few choose to live there, and many long to get out, away from what one adult home advocate described as 'housing of last resort.'

When asked what people at Brooklyn Manor have in common, Robert Gardner, who heads the residents' council, said flatly, 'Our families have given up on us.'

But for all the sad stories that converge at Brooklyn Manor, few have ended more tragically than those of the victims of a van crash on Wednesday. The police are still investigating the cause of the accident, in which a van returning from a routine day trip hurtled off a road in Queens, smashed into a tree and burst into flames.

Almost all of the Brooklyn Manor residents who were killed or injured had lived at the home for at least five years, according to Mary Lagrasta, a longtime resident.

Although Brooklyn Manor has one of the worst reputations among adult homes in the state, Ms. Lagrasta and other residents described a tightly knit community there.

Two of the five crash victims who died, Jose Alvarez, 55, and Mario Gonzalez, 58, were roommates and were very close, residents said.

Mr. Gonzalez stood out because he had something that so many others yearned for: a regular visitor. Every Thursday, Mr. Gonzalez's uncle, Jose Olivera, would go to the home and take Mr. Gonzalez and Mr. Alvarez out for lunch.

Mr. Olivera arrived at Brooklyn Manor again yesterday. This time, he was weeping.

Mr. Olivera said his nephew had always been a little slow, and was picked on at school when he was younger. After working at the Plaza Hotel for three decades, Mr. Gonzalez retired and moved to Brooklyn Manor, Mr. Olivera said.

Another of those killed, William Smith, 69, was from Tennessee and fought in the Korean War, according to Victor Diaz, a Brooklyn Manor resident. Later Mr. Smith was swept up in 1960's activism and joined the Black Panthers, Mr. Diaz said.

But one night, in a van with friends, he got into an argument and was slammed in the head with a pipe, Mr. Diaz said. Mr. Smith was never the same. Consumed by paranoia, he became homeless, Mr. Diaz said, until he ended up at Brooklyn Manor five years ago.

The oldest resident killed in the van was James Lawson, 79, a gracious, avuncular Southerner who spent what turned out to be the last 12 years of his life at Brooklyn Manor. Mr. Lawson had a daughter in New York who sometimes visited, Ms. Lagrasta said.

Miguel Cruz, 56, who also died in the crash, had lived at Brooklyn Manor for 17 years, and his family visited him last week to celebrate his birthday.

The lone woman on the ill-fated day trip was Jean Hastik, 60. According to residents, she had a throaty laugh, and although she moved into Brooklyn Manor in the late 1980s, she always longed for her native Haiti.

Ms. Hastik was severely burned in the crash and was in critical condition last night at NewYork-Presbyterian/Weill Cornell hospital, according to a spokeswoman. When a resident visited Ms. Hastik there, she was reportedly unconscious with bandages wrapping everything except for her mouth.

Carl Harkins, 44, was also in critical condition at the hospital, a spokeswoman said.

Another survivor, Jose Prieto, 56, a man who dreamed of returning to Puerto Rico, was transferred to Kings County Hospital Center in Brooklyn with a spinal injury and was in stable condition, according to a hospital spokesman.

As dusk fell yesterday, a white van pulled up in front of Brooklyn Manor. A head poked out. It was Sheldon Wilson, 41, who was not seriously injured. He rushed into the home and described the accident to the other residents.

A car either bumped or swerved in front of the van, Mr. Wilson told them, and the van rammed into a tree. A passer-by stopped to help. She opened the driver's door and helped him get out. Mr. Wilson said he tumbled out when she opened the back door, and the three other survivors were close behind. Then Mr. Wilson heard an explosion, and flames engulfed much of the van, consuming the five passengers still inside.

Mr. Wilson sobbed as he told his story, residents said, and his body twitched with emotion. 'It was a nightmare,' he told them. Then staff members soothed him and told those gathered to give him some space.

Mick Meenan contributed reporting for this article

New York Officials Move Forward with Recovery-oriented Services for Consumers - Six Counties will Implement Medicaid Initiative
Mental Health Weekly, July 17, 2006

The New York State Office of Mental Health (OMH) this month announced plans to resume efforts for area counties to implement the state's new Medicaid outpatient rehabilitation program, which provides customized recovery-oriented services to consumers with mental illness.

Officials said they plan to work with six 'early adopter' or pilot county directors and providers to issue licenses for the program and provide training and technical assistance.

Although the state Department of Health, as the single state agency for Medicaid in New York, received approval from the Centers for Medicare and Medicaid Services (CMS) to establish the Personalized Recovery Oriented Services (PROS) program in 2004, and seven counties had initially been scheduled to implement PROS, officials only issued the first license for the program in January 2006 (see box page 7).

The CMS approval of the state plan amendment to establish the PROS program establishes authority for the programs to receive Medicaid reimbursement, according to OMH.

State officials said they plan to issue detailed guidance regarding these documentation standards and revised regulations which state these standards soon. OMH said it will address issues raised by early adopter counties, including allowing psychiatric nurse practitioners to work collaboratively with PROS staff psychiatrists and to have their work count toward a portion of required psychiatric coverage.

The state's plans have garnered a mixed reaction from advocates and providers who have expressed concerns over pending documentation standards and the finance issues associated with implementing the PROS program initiative.

The PROS program is a licensed outpatient mental health program for adults that offers a customized menu of recovery-oriented services provided in both centralized locations and in community settings. The PROS program model enables recipients to choose specific services in the domains of assessment, treatment, rehabilitation and support.

The Medicaid-reimbursed program licensed under the Federal Rehabilitation Option allows providers to offer a comprehensive array of services that can be customized to relate to an individual's unique recovery needs, said officials.

"I congratulate New York State and the six counties that have resumed PROS implementation," Linda Rosenberg, president and chief executive of the National Council for Community Behavioral Healthcare (NCCBH), told MHW. "PROS is a courageous and thoughtful attempt to align funding with practices that are based upon the best available research."

Rosenberg added, "It's a program that supports consumers and families as full partners in the treatment process. PROS offers a meaningful opportunity for recovery to become a reality for many with serious mental illnesses."

Even though the issue is controversial, it is being recognized as a great step forward in moving services much closer to a vision of recovery, said Harvey Rosenthal, executive director of the New York Association of Psychiatric Rehabilitation Services (NYAPRS).

"We're expecting and hoping [the PROS program] will achieve long-sought service reforms by integrating services and making them more recovery-, wellness- and employment-focused," Rosenthal told MHW. The PROS model is designed with the expectation that evidence-based practices will be offered to individuals and that they will learn to manage their own recovery, said Rosenthal.

To date officials haven't done enough in joining together Medicaid and recovery-oriented services, said Rosenthal. "PROS promises to do that," he added.

However, Medicaid funding of the PROS programs is still largely an issue, added Rosenthal who cited concerns about whether Medicaid has enough flexibility to pay for a range of rehabilitative and employment services.

One question is whether the Medicaid PROS rate will be adequate, he said. "One concern is whether a blended funded stream might prove to be necessary," Rosenthal said, (and whether).. the Medicaid only reimbursement model (will) be adequate enough to ensure that people who need services, such as weekend "drop in and support activities" will receive those services, he noted.

NYAPRS has considered whether a blended funding stream would be more appropriate such as VESID (Vocational and Educational Services for Individuals with Disabilities) funding along with state-aid funding, noted Rosenthal.

However, they may not know whether Medicaid funding will suffice until the early adopter counties have had some experience with it, he said.

Counties that implement PROS will consolidate "an array of what used to be separated, fragmented services," such as employment programs, clubhouse programs and clinical treatment services, he said. "We want to make sure all the services they need will be adequately funded and offered through this model," he said.

Rosenthal added, "It's pioneering work to move a system to a program that prioritizes individualized care with a recovery focus."

ENSURING COMPLIANCE
The New York State Council for Community Behavioral Healthcare has been working with its members on federal regulations associated with PROS implementation, said Lauri Cole, LMSW, executive director. "Our organization has assisted our members to enhance their internal compliance activities in order to ensure they comply with all federal and state regulations" particularly those pertaining to medical necessity and documentation, Cole told MHW.

Initially, the seven early adopting counties and the participating providers from those counties spent a significant amount of time and money gearing up for licensure, noted Cole. "During the initial rampup, providers hired and trained staff and re-tooled their agencies in a variety of ways but then had to shelve their in-house initiative."

Cole added, "During the waiting period, providers have learned a great deal about the strengths and challenges associated with the planned implementation."

Meanwhile, providers are awaiting the PROS documentation requirements from OMH. Until providers have a look at the actual revisions to the documentation standards and finance issues associated with PROS, they won't really know whether this fits their agency mission and objectives, said Cole. The state OMH plans to issue a summary of documentation standards this week, she added. "We're waiting for details. Theres a significant amount of information we just don't have yet."

PROS was initially conceived as an enhancement to the existing continuum of care here in New York State, noted Cole. "It was not created to supplant existing programs and services, some of which are 100 percent state funded, but instead to provide a state of the art treatment option for a subset of consumers who would benefit from PROS," she said.

"Unfortunately, while we have been waiting for the PROS roll out, we have suffered through several years of gradual erosion in state support for a range of safety-net programs and services designed to meet the needs of consumers in local communities across the state," she said. "This withdrawal of state financing has put additional pressure on the service delivery system, on the state Office of Mental Health and on the consumers who rely on us each day."
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How is the First Community Mental Health Agency to Implement PROS Faring?
The New York State Office of Mental Health issued the first PROS (Personalized Recovery Oriented Services) license to the Plattsburgh, N.Y.-based Behavioral Health Services North in Clinton County in January 2006. The agency had been one seven counties approved to implement PROS following approval from the Centers for Medicare and Medicaid Services (CMS) in 2004.

Now with less than six months under their belt in offering individuals with mental disorders a menu of recovery-oriented services, agency officials said they are pleased that the other counties have been approved to begin implementing PROS programs.

"Presumably, OMH thought we were ready [for PROS implementation] and that we would be a good beginning role model," Peter Trout, chief of services at Behavioral Health Services North, told MHW. We're a rural county; we're the only PROS provider in the county."

The agency's PROS program is entirely funded by Medicaid, he said. "Another reason we were chosen as an early start-up is we have a history of previously billing Medicaid," he said.

The agency's five programs for consumers with mental illness that have been converted into the PROS initiative include: Intensive Psychiatric Rehabilitation Treatment Program, Continuing Day Treatment Program, supported employment program, the social club, and a business-related program.

The programs are all under one umbrella making them more accessible for consumers with the focus on recovery, said Valerie Ainsworth, PROS program director.

"PROS enabled us to make all five services immediately accessible to everyone," Ainsworth told MHW. "The whole focus of PROS is on a recovery principle, she said. "We've taken the focus off of symptom management and long-term treatment."

Consumers like the program's emphasis on health and well-being, she said. "They like being in the driver's seat and making decisions about where they want their own rehabilitation to go, right from the beginning," noted Ainsworth.

The agency currently has about 150 "active" individuals involved with PROS-related services, said Trout. "It's client-involved and gives clients choices, which increases hope for the future," he said.

All of the PROS services are mandated by regulations, said Trout. Some counties might have a clubhouse model or other different programs than Behavioral Health Services North and may implement PROS differently in their respective counties, he said.

Although their agency has received numerous calls about their PROS initiative, Trout said he looks forward to sharing dialogue with other counties once their programs are up and running. "We don't pretend we have all the answers," notes Trout. "One of the problems with being thus far the only program up and running is being unable to share ideas and experiences," he said. "We can't bounce things off of people. I hope the learning collaborative goes on."


Timothy's Law Eases Mental Illness Stigma
Albany Times Union Letter to the Editor, July 12, 2006

I read with interest a recent Times Union article stating that Timothy's Law will be passed by the state Senate during its September session. My hope is that after all these years the Senate will do the right thing and pass Timothy's Law.

As minority leader of the Rensselaer County Legislature, I had the privilege of sponsoring a resolution urging the Senate to act on Timothy's Law, since the Assembly has passed it repeatedly. It passed unanimously at the county level.

Once adopted, Timothy's Law will prohibit health insurance plans from excluding or limiting the benefits for mentally ill and chemically dependent patients. By limiting medical attention to the mentally ill and substance abusers in our communities, we perpetuate their problems. Additionally we promote the stigma acquainted with these aforementioned medical conditions.

Parity within the state health insurance industry sends a signal to all those afflicted with mental illness that we, as a community, recognize their need for treatment and encourage them to receive this treatment. For too many years mental illness has been treated as less of a health concern than physical ailments.

This year would have been a landmark year for Timothy O'Clair (for whom the legislation is named). Timothy would have graduated from high school and made decisions about his future. In its September session, the Senate has the opportunity to adopt this landmark legislation granting parity in health insurance decisions. Another landmark for the Empire State is overdue.

GINNY O'BRIEN
Minority Leader
Rensselaer County Legislature
East Greenbush


39 Sex Offenders Housed in Marcy. By Elizabeth Cooper, Renee Gamela and Mike Kilian

Utica Observer-Dispatch, July 18, 2006

MARCY - Nearly 40 violent sex offenders are already being housed at the Central New York Psychiatric Center, much to the surprise and dismay of Oneida County's executive.

Under a plan disclosed last winter but seldom discussed since, New York state moved the offenders here before responding to Oneida County's concerns about public safety, Executive Joseph Griffo said Monday night.

The first 39 offenders arrived in the past several months, state Office Of Mental Health spokeswoman Jill Daniels said earlier Monday.

Another 80 violent offenders are scheduled to arrive in the near future under the plan, which would add new jobs in the Mohawk Valley.

Irish Road resident Elizabeth Lupini's home is not far from the facilities, but she said she's never been uneasy about inmates being housed there and isn't concerned now about sex offenders.

"I feel that the security is very good, so I don't have any concern for my physical well-being or that of my children and grandchildren who visit here," Lupini said. "I'd be concerned if they moved next door."

Griffo said Monday he was displeased the first offenders have arrived in Marcy before New York state has addressed the county's wishes expressed in March 8 and June 22 letters he wrote to state Mental Health Commissioner Sharon Carpinello.

"I'm very disappointed and concerned," Griffo said. He's sought three steps by the state:

* That the mental health commissioner appear in public locally to address neighbors' concerns and discuss a benefits package for the host community to fund added services such as police protection.

* That the state provide security for the violent sex offenders commensurate with the seriousness of offenses committed by the individuals being housed.

* That legislation be passed in Albany requiring that released sex offenders be returned to their home county and be required to stay there for at least one year.

"I never received a response," Griffo said. Monday, he said he called the governor's office expressing his concerns.

"There is not a lot I believe that we're going to be able to do to prevent this," Griffo said. But, "I want to try to at least allay some of the concerns" residents have about bringing the sex offenders to Marcy, he said.

Local resident Lupini said she would be apprehensive if sex offenders were released into the community, adding that state laws need to be changed to create stricter penalties for sex offenders.

As part of the state's 2006-07 budget, $35 million was appropriated for the creation of containment centers for violent sexual offenders, including ones at the Central New York Psychiatric Center and Mid-State Correctional Facility, both in Marcy. But the two houses of the state Legislature have been unable to reconcile two separate bills related to civil commitment of this group of sex offenders once they have completed their prison terms.

About 148 offenders will be housed at Mid-State by summer 2008.

Daniels said 111 job positions at the facility have been filled so far, and others are being actively recruited.

N.Y. Advocates Buoyed By Budget Wins; Concerned About Parity
Mental Health Weekly, July 17, 2006

While New York behavioral health advocates have succeeded on several legislative fronts, including the passage of legislation to end solitary confinement of prisoners with severe psychiatric disorders, enhanced community-based services for adults, and a children's mental health initiative, there has been mixed reaction to the state's long-awaited parity bill.

In the eleventh hour, the state Assembly and Senate agreed to advance Timothy's Law, the state's long-awaited mental health parity bill aimed at ending discrimination against mental health care by insurance companies. The legislation is expected to be approved the next time the state legislature reconvenes, possibly in the fall, say advocates.

The legislation, however, is missing the chemical dependency component, which had been part of the original Assembly bill, said advocates, causing many to be disappointed.

"After many years of advocacy efforts we're enthusiastic," Glenn Liebman, chief executive of the Mental Health Association of New York State, told MHW. "We're disappointed about the chemical dependency [component]."

The legislation still awaits Gov. George Pataki's signature, he said. "Timothy's Campaign is more than a bill; it's a movement," said Liebman. "Our job is to put some kind of pressure to bear with the governor as we did with the legislature."

If the governor signs the bill, New York will become the 38th state to have some form of mental health parity, he added.

"Our member agencies remain deeply concerned over the fact that the agreement reached last month does not include a chemical dependency benefit," Lauri Cole, LMSW, executive director of the New York State Council for Community Behavioral Healthcare, told MHW.

"You have to ask yourself: what message are we sending to individuals and families who are struggling with addictive disorders?," noted Cole. "We are troubled each and every time a change in state policy results in a message, either stated or implied, to a group of New Yorkers that their needs are somehow less deserving than another group of similarly situated individuals."

"As a member of the Timothy's Law Campaign, our organization takes some satisfaction in knowing that our grassroots efforts contributed towards a concrete outcome this year," said Cole. "But our members are not celebrating. Instead we are re-doubling our efforts and working alongside our partners from the chemical dependence community to ensure that the folks who need treatment for addictive disorders have access to the same treatment opportunities as those challenged by a mental illness."

ADVOCACY EFFORTS
New York advocates were pleased their momentum over the last several years on other important mental health issues helped to pass a number of bills (see MHW, June 26).

State lawmakers passed the Children's Mental Health Act of 2006, which mandates that the state develop a children's mental health plan and create an advisory board to monitor the plan's implementation. Among its provisions, the bill would require insurance coverage for children under 18 with attention-deficit/hyperactivity disorder (ADHD), disruptive behavior disorders
or behavior caused by emotional disturbances that placed the child at risk of causing personal injury or significant property damage.

Lawmakers also passed legislation, which establishes a waiting list for people seeking community, housing and support services. The state legislature also passed a measure funding community-housing beds exclusively for adult home residents with psychiatric disabilities.

"We think this is very significant," Harvey Rosenthal, executive director of the New York Association of Psychiatric Rehabilitation, told MHW." This is the first time we've guaranteed [dedicated] beds only for adult home residents."

The "SHU" bill, which would expand mental health training to correctional officers and establish an oversight body, passed the Assembly and Senate. The SHU bill passed unanimously on the last day of session, said Rosenthal, who credits Sen. Michael Nozzolio (R-NY), other lawmakers, advocates and correctional officers for their support.

Overall, advocates are pleased with the recent legislative activity, including a restoration of funding of the state's Cost of Living Adjustment (COLA) for community support programs, said Rosenthal.

"We're going working very hard to get the administration to sign these bills into law," he said.