February
7, 2006
SAVE
THE DATE:
MHANYS' LEGISLATIVE DAY
MARCH 13, 2006 |
GOVERNOR
PATAKI VETOES LEGISLATION TO COVER MEDICATIONS FOR DUAL ELIGIBLES:
On Friday, Governor Pataki vetoed legislation (A.9462 / S.6410)
that would have provided a safety net for dual eligible individuals
attempting to get their medications under the new Medicare prescription
drug benefit. Last week, in calling for people to contact the
Governor in support of this legislation, we incorrectly noted
that this legislation would cover the co-pays that many dual eligibles
are having extreme difficulty in paying in order to access their
medications. Instead, this bill would essentially have extended
Medicaid coverage for medications denied by a Medicare Part D
plan until the difficulties with the new drug plans were ironed
out.
On
Monday night, the Assembly moved to override the Governor’s
veto by a vote of 141-0. Now, it is up to the Senate to act on
this measure. We encourage everyone to contact their Senator to
urge them to override the Governor’s veto of (A.9462 / S.6410).
If you don’t know who your Senator is, go to http://nymap.elections.state.ny.us/nysboe/.
Call
(518) 455-2800 and asked to be connected with your Senator’s
office.
Tell
them:
"I'm
a registered voter from (your locality) urging you to override
the Governor's veto of A9462/S6410 to make sure no one's health
is threatened by the Medicare Part D mess!"
MEDICARE
PART D TRANSITION PERIOD EXTENDED: Last week also brought
with it the announcement from HHS and CMS that the transition
period under the new drug benefit will be extended from the original
30 days time period to 90 days. Included as a safeguard to ensure
that people were not simply denied medications just after enrolling
in a new program, this extension will continue to require plans
to cover medications that are not necessarily on their formulary,
providing beneficiaries more time to get their medication changed,
get an exemption from the plan, or change the plan in which they
are enrolled.
FEDERAL
BUDGET RECONCILIATION VOTE: Last week, the US House of Representatives
approved a budget package that includes billions of dollars in
Medicaid cuts and includes many other damaging cuts to human services,
many of which will hurt people living with mental illness. Following
below is NMHA’s Capitol Hill Update, which details the vote
and the contents. First, is the list of the New York delegation
of the House of Representatives and how they voted:
Yea
-
Peter
King (R-Nassau, Suffolk)
-
Vito
Fossella (R-Richmond, Kings)
-
Sue
Kelly (R-Putnam, Dutchess, Orange, Westchester, Rockland)
-
Sherwood
Boehlert (R-Oneida, Herkimer, Otsego, Chenango, Broome, Tioga,
Cortland, Tompkins, Cayuga, Seneca, Ontario)
-
James
Walsh (R-Onondaga, Cayuga, Wayne, Monroe)
-
Thomas
Reynolds (R-Wyoming, Erie, Genesee, Monroe, Livingston, Niagara,
Orleans)
Nay
- Timothy
Bishop (D-Suffolk)
- Steve
Israel (D-Suffolk, Nassau)
- Carolyn
McCarthy (D-Nassau)
- Gary
Ackerman (D-Queens, Nassau)
- Gregory
Meeks (D-Queens)
- Joseph
Crowley (D-Queens, Bronx)
- Jerrold
Nadler (D-New York, Kings)
- Anthony
Weiner (D-Kings, Queens)
- Edolphus
Towns (D-Kings)
- Major
Owens (D-Kings)
- Nydia
Velazquez (D-New York, Kings, Queens)
- Carolyn
Maloney (D-New York, Queens)
- Charles
Rangel (D-New York, Bronx, Queens)
- Jose
Serrano (D-Bronx)
- Eliot
Engel (D-Bronx, Westchester, Rockland)
- Nita
Lowey (D-Westchester, Rockland)
- John
Sweeney (R-Columbia, Dutchess Essex, Greene, Rensselaer, Saratoga,
Washington, Warren, Delaware, Otsego)
- Michael
McNulty (D-Albany, Schenectady, Rensselaer, Montgomery, Schoharie,
Fulton, Saratoga)
- Maurice
Hinchey (D-Ulster, Sullivan, Orange, Dutchess, Delaware, Tioga,
Broome, Tompkins)
- John
McHugh (R-Clinton, Essex, Franklin, Fulton, Hamilton, Jefferson,
Lewis, Oneida, Oswego, Madison, St. Lawrence)
- Brian
Higgins (D-Erie, Chautauqua)
- Louise
Slaughter (D-Monroe, Orleans, Niagara, Erie)
- John
Kuhl (R-Cattaraugus, Allegany, Steuben, Chemung, Schuyler,
Yates, Monroe, Ontario)
NMHA
Capitol Hill Update
February 6, 2006:
Razor-Thin
Budget-Cut Vote Sets Stage for State Battles
Grassroot Advocacy’s Impact Can Be Long-lasting
Last
week, in the face of unrelenting grassroots’ pressure,
the House of Representatives adopted a budget package that threatens
$42 billion in Medicaid and other painful human-services’
cuts over the next decade. Passing by the thinnest of margins,
216 to 214, the cuts could change the face of healthcare for
millions of Americans with devastating consequences. In an otherwise
straight party-line vote, 13 members rebuffed their party leaders
to vote “no” on this important bill. (Of that 13,
four took the very difficult step of reversing their position
after an earlier “yes” vote on a virtually identical
version).
While
this budget reconciliation bill is expected to be signed by
the President, the groundswell of opposition mounted by mental
health associations and other advocates stands to have a powerful,
long-term impact.
The
budget-reconciliation measure allows, but does not require,
states to restructure Medicaid through benefit-reductions and
greater cost-sharing. Since the massive effort to educate elected
representatives nearly upended the bill in both chambers—passing
by only one vote in the Senate and two votes in the House—it
can hardly be said to be a mandate that the States act. Rather,
advocates are well positioned to remind state legislators of
the depth and breadth of opposition to such cuts and of the
potential electoral consequences of taking that step. Congressional
leaders are also likely to remember the huge public outcry against,
and broad-based efforts to defeat, these budget cuts. With the
likelihood that further Medicaid “reforms” will
be proposed, congressional leaders and, particularly those targeted
by the recent advocacy efforts, are likely to be much more wary
of such proposals.
Advocates
are to be congratulated for “going to the mat” in
this fight—which resulted in (1) deeply educating Congress
and the media to the importance of Medicaid for people with
mental illnesses; (2) converting several members who had earlier
supported these budget cuts; and (3) nearly defeating a devastating,
irresponsible bill. And rather than taking this as an outright
defeat, however, advocates can take pride in the intensity of
the fight and the dividends those efforts can have in preventing
full implementation of Medicaid cuts at the state level.
NMHA
also urges advocates to thank those who opposed this bill, and
particularly those who bucked their congressional leadership
to do so: Reps. Gerlach (PA), Johnson (IL), Jones (NC), LaTourette
(OH), Leach (IO), McHugh (NY), Ney (OH), Paul (TX), Ramstad
(MN), Simmons (CT), Smith (NJ), Sweeney (NY), and Wilson (NM).
IN
THE NEWS:
Albany
Weighs Confinement of Sex Offenders After Prison Term. By
Jennifer Medina
The New York Times, February 6, 2006
ALBANY,
Feb. 4 — In the legal combat against sex offenders, local
and state governments have done everything from using global tracking
systems and banning released offenders from local parks to stopping
them from working on ice cream trucks.
Now,
New York is preparing to go a big step further, with lawmakers
passing bills that would allow for the civil commitment of some
sex offenders after they are released from prison. And in his
budget, Gov. George E. Pataki included a $130 million plan to
raze a prison north of Binghamton and replace it with a compound
to house up to 500 sex offenders who have already served their
sentences.
More
than a dozen other states have enacted civil commitment laws,
which have been upheld by the United States Supreme Court. Prosecutors
and politicians have pressed for the measures, saying that they
are the only way to protect potentially hundreds of other victims.
But opponents say state officials are headed down the path of
the Rockefeller drug laws, creating strict penalties that will
do little to deter crime and will eventually be repealed.
"We
seem be making these decisions on fear rather than on fact,"
said Harvey Rosenthal, the executive director of the New York
Association of Psychiatric Rehabilitation Services. "We don't
have a clear idea of what treatment works, and what doesn't. We
don't know what kind of real solution this will bring. We're moving
feverishly in a way that will require all kinds of revisions later."
Last
year, the governor quietly began using existing mental health
laws to keep sex offenders in an institution once they were released
from prison. In November, a State Supreme Court justice ruled
the procedure illegal, but the governor appealed the decision.
The case is expected to go to the state's highest court later
this year.
Over
the last several months, 39 men have been placed at Manhattan
Psychiatric Center, Kirby Forensic Psychiatric Center on Wards
Island and Central New York Forensic Psychiatric Center in Marcy,
northwest of Utica. The governor's budget proposal anticipates
placing nearly 200 more sex offenders in central New York and
in St. Lawrence Psychiatric Center this year.
The
program is expected to cost $27 million this year, with an additional
$35 million allocated for renovations at the complexes.
Unlike
other criminal legislation, civil confinement laws are not meant
to deter or punish. But proponents of the practice say that sex
offenders are likely to commit the same kinds of crimes again
after their release from prison, and that keeping them in custody
is the only way to assure public safety.
Eight
percent of all convicted sex offenders in New York are arrested
within eight years of being released, according to the state's
Division of Criminal Justice Services.
"I
think you begin with the fundamental question of do we allow sexually
violent predators back into our community?" said Chauncey
G. Parker, the governor's criminal justice adviser. "If there
are reasonable steps to take, we need to take those steps. What
do you do with somebody who is about to walk out of prison into
a community and this person is going to molest and going to rape
again?"
But
in Washington State, a study by the independent research office
of the Legislature showed that felony-level sex offenders had
a recidivism rate of 2.7 percent — lower than the rate of
repeat arrests for felony-level drug violations and several other
categories of crime.
Although
the number of sex crimes has remained stable within the last several
years, lawmakers in New York State are under intense public pressure
to approve the legislation. In recent months, several high-profile
incidents — including one in which a woman was killed by
a sex offender in the parking lot of a White Plains mall —
have prompted renewed calls for strict penalties.
The
New York State District Attorneys Association endorsed the Senate's
civil confinement proposal last year. Jeanine F. Pirro, the former
Westchester district attorney who is now running for attorney
general, has repeatedly made pleas to create such a system.
Last
month, the New York City Bar published a policy paper stating
that sex offender civil commitment laws could easily be abused
and that "misplaced fears" could keep sex offenders
incarcerated for years after their sentence and could represent
a threat to civil liberties.
Members
of the Senate and the Assembly will begin to meet on Monday to
debate how the state might determine who would be placed under
civil confinement. Some legislators are pressing for a larger
role for mental health experts, but advocates for the mentally
ill have expressed wariness of how the experts would determine
the criteria used to make such decisions and say the offenders
would wrongly be grouped with the mentally ill.
In
2002, the United States Supreme Court refined its earlier ruling,
deciding that people who were "unable to control their dangerousness"
and were likely to commit another sex crime could be civilly committed.
Mental
health advocates and experts say that only 6 percent of sex offenders
have a diagnosed mental illness, and are more akin to an alcoholic
or someone suffering from a compulsive disorder. Mental health
advocates say they are also worried that civil confinement programs
paid through the state's Office of Mental Health may soon divert
money from mental health patients.
"Equating
sex offenders with mental illness in the public eye puts us back
many, many years," said Michael Seereiter, the public policy
director for the Mental Health Association of New York State.
"For all the money that they might put out for housing sex
offenders, it is the same funds that we can use on treatment and
preventative services."
Dale
M. Volker, a Republican from Western New York who is sponsoring
the civil confinement bill in the Senate, said the state should
focus on creating a system that would keep some sex offenders
confined, but also provide intensive treatment.
"If
they can't be treated and they are dangerous, you have got to
come to grips with the fact they should be put away," he
said. "We have to deal with the issue that maybe we can't
do anything with these people."
Predator
plan has doubters. By Rick Karlin
Albany Times Union, February 1, 2006
Pataki proposal to confine sexual offenders raises concerns
about worker safety
ALBANY
-- With chronic understaffing and employees working mandatory
double shifts, workers in psychiatric hospitals say their ranks
are already thinly stretched at a time when Gov. George Pataki
wants them to help oversee hundreds of sexual predators freshly
released from prison.
"It's
pretty nasty sometimes," said Ricky Fernandez, a registered
nurse at Capital District Psychiatric Center. In 8 years at the
hospital, he has suffered two serious assaults, he said, including
one that resulted in a broken nose and another in which he sustained
bruised ribs when an enraged patient lifted him up, dropped him
from about 5 feet, and leaped on top of him.
Fernandez'
union, the Public Employees Federation, is pushing for laws that
would force the state Office of Mental Health, which runs CDPC,
and other public employers to institute protective measures. He
spoke about his assaults while making a DVD about workplace violence
that PEF plans to hand out to lawmakers.
Observers
also are asking if OMH, struggling to protect the workers it now
has, will be able to ensure the safety of people who will watch
over the 600 high-risk sexual predators who, under Pataki's civil
confinement plan, would be kept in new facilities operated largely
by the mental health agency.
Worker
safety is the latest concern to surface with Pataki's plan to
convert Camp Pharsalia, a minimum security prison in Chenango
County, into an institution for 500 sex offenders. Others would
be housed in psychiatric centers in New York City, central New
York, Rochester and Ogdensburg, St. Lawrence County. They would
be overseen largely by OMH staff members.
Pataki's
plan was initially hailed by many Republicans as a solid law-and-order
move to protect the public from sex predators. Republican attorney
general candidate Jeanine Pirro has also called for such a policy,
known as civil confinement.
Not
everyone is convinced, though. Mental health advocates have objected
for a number of reasons. Some fear civil confinement would drain
resources from existing psychiatric hospitals. Others say sex
predators should fall under the purview of the prison system.
And
OMH workers say they are already getting patients who are more
difficult to deal with, while at the same time staff shortages
are forcing employees like Fernandez to frequently do double shifts.
"We're
not looking to attack OMH. We feel it's been improperly downsized,"
said Jonathan Rosen, PEF's director of occupational safety and
health.
PEF
officials point out that OMH has budgeted for about 17,000 employees
-- compared to more than 19,000 in 1999.
OMH
officials say they are confident workers will get the support
they need to run Camp Pharsalia.
"The
program proposed for Camp Pharsalia will be a completely secure
state-of-the-art facility, and its use of best practices will
make it a model for other facilities around the country,"
said OMH spokeswoman Jill Daniels.
Still,
some lawmakers also note that by 2009, Pataki's plan would put
more sexual predators in civil confinement in New York than Texas,
which has had civil confinement for years.
"It
took Texas five years to reach a population of 400 individuals,"
said Peter Rivera, D-Bronx, who heads the Assembly's mental health
committee. "We anticipate being able to reach 650 in four
years," he said, adding he's not sure if the state could
realistically deal with that number in such a short period.
"I
think the jury is still out on what these institutions are eventually
going to look like," added Rivera, who noted that correctional
officers and other workers are likely to be a part of the program
too.
The
governor proposes hiring 441 OMH employees for the civil confinement
plan.
Union
members say they welcome the additional work. "It will create
jobs and (pay) upgrades," said Steve Madarasz, of the Civil
Service Employees Association, which is pushing its own set of
workplace safety laws as well.
But
without legislation, safety improvements are unlikely to occur,
they add.
The
safety issue is just one aspect of what is likely to become a
multilayered debate over how to put a civil confinement program
in place.
"This
is a political hot potato," said David Seay, executive director
of the National Alliance on Mental Illness' New York affiliate,
which represents families of the mentally ill and contends the
issue of sexual predators is separate from other mental health
issues. "These people have become the lepers of the 21st
century and we put them in the psychiatric hospitals because there
is no other place to put them."
Sex
predators in CNY. By Marnie Eisenstadt
Syracuse Post-Standard, February 5, 2006
People
don't end up in Pharsalia by accident.
The
Chenango County town, where some of the main roads are still unpaved,
is 15 miles from the nearest grocery store, bank or doctor.
Most
of the people who live there do so because their parents did,
as did their parents' parents.
But
Gov. George Pataki's 2006 budget has put the community of 600
people on the map. He has a $130 million plan to house 500 of
the state's most dangerous sexual predators in Pharsalia.
The
state would level Camp Pharsalia, a minimum security prison camp
with 144 inmates and 91 employees bounded by state forest, homes
and farms. There are no high prison fences or armed guards in
towers. Inmates can walk away, and have.
It
would be replaced by a civil confinement center, which if approved
by the state Legislature would open in 2009. Unlike the campus
of brown and green cabins that looks more like a park than a prison,
the new facility would have fences one 8 feet high with an electric
motion sensor, the other 16 feet high with razor ribbon. The yard
would always be lit, and there would be 24-hour video surveillance,
according to the state Office of Mental Health, which would run
the center.
The
sex offenders housed at Pharsalia would receive intensive treatment
provided by licensed professionals, said Jill Daniels, an Office
of Mental Health spokeswoman.
The
center is Pataki's answer to a growing concern about sexual predators
that has local and state governments across the country struggling
to make their residents feel safer. States passed 160 laws dealing
with sex offenders in 2005, according to the National Conference
of State Legislatures.
If
New York's civil confinement center is approved, it would join
16 other states with civil confinement laws. At least six have
dedicated confinement centers like the one proposed in New York.
Dennis
Brown, Pharsalia's town supervisor, said he was shocked to hear
that the state wanted to put the sex offenders in his town. He
learned about the plan the morning it was announced, after the
chairman of the Chenango County Legislature got a call from the
state.
But
on another level, Brown wasn't surprised. His town has a history
of being a good place to put things nobody wants. In the 1990s,
Pharsalia was on the state's short list for a low-level nuclear
waste dump. The state abandoned that plan.
In
1996, it was Chenango County that wanted to use Pharsalia as a
dumping ground. That time, it was for a landfill, and the county
was successful. The town is paid $4 for each ton of trash dumped
there.
The
town would receive no direct payment if the civil confinement
center is built there. But the center would create 1,000 new jobs,
each with a minimum salary of $40,000.
"Putting
them here is kind of a two-edged sword," Brown said as he
sat in the spare office of his wood pallet-making business. "You're
talking about 1,000 jobs. Chenango County could use 1,000 jobs
. . .
"The
other side of the sword is how do you live with it? I mean, how
do you live with it?" he said, emphasizing every word.
Legislature
must act
Pataki's
plan is far from a sure thing. The money for the center still
has to be approved. It is projected to cost $130 million to build,
plus $200,000 per bed annually.
The
state Legislature has yet to pass a law allowing civil confinement
of sexual predators, although it appears likely this session.
The Senate and Assembly have agreed on different versions of the
law. Both would require that offenders leaving prison be committed
to civil confinement only after hearings and a trial.
Since
September, the governor has taken matters into his own hands,
using an executive order to commit dangerous sex offenders. So
far, 41 have been committed after their prison terms ended. That
action is the subject of a lawsuit, and others will likely follow
if the civil confinement law passes.
Brown
wonders how it can be legal to keep people locked up after they
have served their time.
"If
a guy has been arrested, convicted and sentenced, put in a prison
and served his time ... and you say, 'No, you can't go home,'
I mean, somehow that's going to become an issue at some point,"
he said.
Does
it work?
People
who treat sex offenders question the usefulness of civil confinement.
Kenneth
Lau, president of the New York State Association for the Treatment
of Sexual Abusers, said he isn't necessarily opposed to civil
confinement of sexually violent offenders, but he believes the
governor's plan is premature.
"We
caution that whatever is being put into place it's not a knee-jerk
reaction," said Lau, who runs a sex offender treatment center
in Westchester County.
His
group and the New York State Alliance of Sex Offender Service
Providers are concerned that civil confinement has not been proven
to be effective. Many states have struggled with the costs, which
continue to increase as more people are committed and very few
are released.
Dr.
Fred Berlin, who started one of the country's first sex offender
treatment centers 25 years ago at Johns Hopkins University, said
the discussions about civil confinement haven't been honest ones.
He
said if the point is to keep truly dangerous people away from
society, rather than to rehabilitate them, then states should
be honest about that. Civil confinement laws cast the practice
as a way for offenders to receive treatment, because legally they
must, but most are just a cover for lifetime imprisonment, Berlin
said.
"As
a society, I think we ought to say that and discuss how we balance
safety with civil rights," said Berlin, a psychiatrist.
He
said the most high-profile sex offenders - those who kidnap, rape
and murder - should never be released back into society, but they
are a very small percentage of offenders. Recidivism rates for
sex offenders are lower than they are for people who commit other
types of crimes, he said.
Berlin
said he favors strong laws and sentences for sex offenders, but
also enough treatment to help them control their urges. That means
more treatment in prison, more when they leave prison, and, perhaps
most importantly, more to help would-be sex offenders before they
act.
But
Laura Ahearn, executive director of Parents for Megan's Law in
Stony Brook, said civil confinement is the way to go.
"The
idea is that we want to make community safety a priority,"
she said. "We don't want sex offenders walking around in
the community, and they are."
'A
hundred questions'
If
anyone in Pharsalia wants to organize opposition to Pataki's plan,
he won't have an easy time of it, said Christine Barnhart, owner
of the town's only bar, The Balsam Inn.
The
few people who live in the town are spread over 25,000 acres.
Barnhart remembers when the nuclear waste dump was looming. Then,
people did get together to oppose it.
"It
takes something big like that," she said. The civil confinement
center doesn't seem to rise to that level, perhaps because of
the jobs it would bring.
As
he finished his lunch at the bar, town resident Barry Stevens
weighed in.
"People
there now might attract a worse type of people," he said,
referring to the current population at Camp Pharsalia. Some of
the family and friends of the minimum security inmates cause trouble
at the bar and other places around town, he said. Stevens thought
the sex offenders might not have any visitors at all.
"I
don't see it as any worse," he said.
But
Theresa Willard does. She and her husband, Steve, bought their
trailer home and 23 acres of land up the road from Camp Pharsalia
five years ago. Now she's thinking about selling. Even though
1,000 jobs sounds good and she knows the sex offenders have to
go somewhere, all thoughts about the place end the same way: "We
don't like it." She worries about her nine grandchildren.
"Maybe
we'll get it stopped," she said.
At
the very least, Brown said, people want more information. They
want to know how tight security would be and what would happen
if someone got out.
"We
have a hundred questions," he said.
Civil
confinement is a temporary solution. Editorial
Troy Record, February 2, 2006
Governor
Pataki's plan to use vacant space in psychiatric centers around
the state as temporary holding stations for the most dangerous
sex offenders has some flaws. But it sure beats the alternative
of letting the offenders back into the community.
New
York is home to more than 22,000 sex offenders of all levels.
About 2,000 of them are Level 3 offenders, those deemed at the
highest risk of repeating their crimes.
That's
a polite way of saying that prison did not cure their perverse
compulsions and the community is their hunting ground.
That's
where civil confinement comes in, for the Level 3 sex offenders
who pose the most threat to the public. No one is pleased with
the idea of sex offenders clumped in one place, but that's better
than having them on the streets.
Some
protest civil confinement, touting the offenders' rights, but
pedophiles and rapists have broken their contract with society
as well as the law. The rights and safety of law-abiding, decent
people must come first. Still, any civil confinement proposal
must be limited to the most serious offenders, the confinement
must be determined in a public process and releases should be
considered based on psychiatric evaluations and treatments. Civil
confinement should be considered a temporary situation, as Pataki
suggests.
Six
times the governor proposed laws modeled after those in 16 other
states in accordance with a U.S. Supreme Court ruling, with the
support of the Republican-controlled Senate but not the Democrat-controlled
Assembly. Democrats have their own version.
Under
Pataki's plan, space at five state psychiatric centers would be
used for civil confinement, with sex offenders kept away from
the regular patients.
Some
mental health advocates are calling this plan a misuse of the
mental health system. They complain that there's already a long
waiting list for bed space at the institutions. That's a valid
point. Mental illness is not a crime, and these people should
get the help they need.
The
civil confinement sites collectively can hold up to 623 offenders
until a secure 500-bed site is built and opened in 2009 at Camp
Pharsalia in Chenango County. The budget for creating the temporary
sites is $35 million, with an additional $27 million needed for
staffing and operations next year. The bill for the permanent
site is estimated at $130 million.
It's
expensive, but allowing the predators to create more victims is
unthinkable.
Mentally
ill shaken by new Medicare plan. By Susan Levine
The Washington Post, February 6, 2006
Some
prescription denials have heightened distress
Even
among the incident reports crossing Craig Knoll's desk weekly
now, this one stood out: A 43-year-old client of Knoll's mental
health agency, a man who suffers from bipolar disorder, had come
from his pharmacy frustrated to the point of meltdown. There were
snags in his new Medicare drug plan. Of his four medicines, it
would fill only two.
"I'm
not going to take any of them anymore," he yelled, according
to the report by caseworkers. Before they could do anything, he
grabbed the prescription bottles he'd just gotten, ran for the
restroom and dumped both in the toilet.
"He
flushed everything he had on hand," recounted Knoll, executive
director of Threshold Services in Silver Spring, whose staff spent
day after day last month grappling with the many ramifications
of the government's troubled program. Threshold came to the rescue
of clients who couldn't get any medications or who, despite their
pills, were in increasing distress because of all the confusion.
It reimbursed several who'd mistakenly paid hundreds of dollars
for pills that should have cost them a few dollars -- and replenished
the supply of the client who had thrown his away.
"I'm
not saying it's the federal government's fault he flushed his
meds," Knoll said. "I'm saying it's the federal government's
fault he couldn't get his meds. It's not surprising that people
with mental illness respond in ways that people with mental illness
respond."
Since
the prescription program made its debut Jan. 1, some of the estimated
2 million mentally ill Americans covered because they receive
both Medicare and Medicaid have gone without the drugs that keep
their delusions, paranoia, anxieties or stress in check. Mental
health service providers and advocacy organizations nationwide
say they worry that scores are at high risk of relapse. Numerous
people have been hospitalized.
"The
continuation of medications is absolutely critical to keep them
in community living," said Steven S. Sharfstein, chief executive
of the Shepherd-Pratt Health System in Baltimore and president
of the American Psychiatric Association. Last week, the association
joined other mental health groups in a lengthy talk with Medicare
officials about the myriad problems.
'We
could have an epidemic'
"I
really don't know what the future will bring. . . . I have a very
deep concern that psychiatric patients will suffer disproportionately,"
Sharfstein said. "If by the end of February or March, if
[federal officials] haven't figured this out, we could have an
epidemic on our hands."
The
mentally ill are nearly a third of the "dual eligibles"
who qualify for both Medicare and Medicaid because of income and
disability or age. Mark B. McClellan, head of the Centers for
Medicare and Medicaid Services, told a Senate committee hearing
Thursday that a prime focus is resolving the "remaining transition
issues" for this extremely vulnerable population.
That
will not happen quickly. Like other Medicare-Medicaid recipients,
the mentally ill were to have been signed up automatically for
Part D at the start of the year, with responsibility for their
prescriptions shifted seamlessly to private drug plans. Clinicians
expected a bumpy beginning even in the best of circumstances.
The new coverage often forces beneficiaries to switch from their
usual pharmacies to different locations and strange faces, changes
that Pam Cudahy of St. Luke's House in Bethesda said can have
a huge effect on someone with few coping resources.
"Is
the environment familiar? Is the person [behind the counter] familiar?
When I show my prescription card, will the same thing happen as
happened before?" Such questions represent daunting challenges,
explained Cudahy, whose agency provides crisis care and psychiatric
rehabilitation to about 1,000 teenagers and adults. "You
don't want something to happen they're not expecting."
But
repeatedly, she and others say, people have fallen through the
program's cracks and discovered they have no insurance -- and
have either run out of pills or rationed their medicine because
they feared they would be left without.
Or
they have been assigned to plans that will pay for some but not
all of their psychiatric prescriptions -- an untenable and potentially
dangerous situation given the complicated multiplicity of drugs
people often take, with some pills to treat symptoms and others
to counteract side effects. Unlike many medicines, psychiatric
drugs are not easily substituted.
High
cost of program
In
Alexandria last month, a mother of two with a history of homelessness
and attempted suicide left a drugstore empty-handed after being
told her antidepressant was not covered. "For her, it was
overwhelming," said Lix Wixson, director of acute care at
the local Community Services Board. "She shut down."
The
agency bought her a week's supply of Lexapro while it changed
her plan and stabilized her condition. In fact, it made repeated
purchases for clients in January at a cost exceeding $2,400. That's
money unlikely to be reimbursed. "We can't do that indefinitely,"
Wixson said.
St.
Luke's House turned to Montgomery County's mental health prescription
contract for assistance. At one point, the organization was counseling
15 people with disabling illnesses, Part D errors and dwindling
prescriptions. Michelle Ponder of Rockville was among them, and
she admits she was scared as she counted down her pills. Her daily
dosage includes Lamictal, a finely tuned mood stabilizer; Seroquel,
which is used for schizophrenia or bipolar disorder; and Lithobid,
a controlled form of lithium. Together, the three keep her out
of the hospital, she believes.
Her
housemate, Geraldine Champa, came close, too. More than a week
into 2006, she was down to only two of the orange tablets that
minimize the extreme mood swings and panic attacks that otherwise
derail her life. With medication, she can manage much like the
next person, with a part-time job and her own independence. Without
it, she starts to lose control. The upset returns, and the anger.
She has more and more difficulty dealing with others.
"You
can't skip a day," she explained recently, as Ponder and
several others at St. Luke's nodded their understanding.
Yet
even months of well-informed guidance and planning are no guarantee.
"It still crumbles in front of you," said a tired Cherie
Sammis, clinical director of the Perry Family Health Center in
Northwest, although the calls that have been waking her at 5:30
a.m., interrupting her at work and continuing late into the night
have come not from center patients but from family halfway across
the country.
Sammis's
younger sister struggles with manic depression and schizophrenia.
As her fears about her Medicare prescription coverage spiraled
-- fears borne out by repeated computer glitches and plan inconsistencies
-- she deteriorated precipitously. Recently, she told Sammis long-distance:
" 'I've hurt myself before. . . . I'll hurt myself again.
I've got to save my life.' "
Pataki
rejects bill prompted by Medicare problems.
Newsday,
February 3, 2006
ALBANY,
N.Y. (AP) _ Gov. George Pataki said Friday he was vetoing a bill
that would have indefinitely given New Yorkers access to medications
if they are denied coverage under the new Medicare prescription
drug benefit.
Pataki
said the bill passed by the Republican-led Senate and Democrat-controlled
Assembly wasn't necessary because the U.S. Health and Human Services
Department agreed to reimburse the state through March 8 for the
cost of giving prescriptions to seniors having trouble with the
new plan.
Pataki,
a Republican, enacted a temporary measure Jan. 13 directing the
state Health Department to allow access to the drugs for seniors
eligible for Medicare and Medicaid. The legislation would have
permanently extended the measure until problems with the Medicare
benefit that launched Jan. 1 were completely resolved.
State
Sen. Kemp Hannon, chairman of the Health Committee and a sponsor
of the bill, said he was disappointed by the governor's move.
"No
eligible senior should have to worry or fear that they will be
denied coverage for prescription medications they need to stay
healthy and active," Hannon said. "I will be studying
all steps that the Legislature can take in the wake of the governor's
veto to make sure that this promise to our seniors is kept."
Pataki
said pharmacists must try to access the Medicare benefit from
Feb. 16 to March 8. If access is denied, the state will continue
to pay for the coverage and receive reimbursement from the federal
government.
After
March 8, the state Health Department will monitor the effects
of reverting back to Medicare Part D.
The
timeline shows that both the state and federal government want
to establish a deadline for bringing those who have had problems
into the new plan.
Pataki
did not specify what would happen to seniors still experiencing
problems or extra costs with the program after March 8, though
he promised to take additional steps if necessary.
"The
veto is a slap in the face to tens of thousands of senior citizens
who have fallen through the cracks of Part D through no fault
of their own," said Democratic Assemblyman Richard Gottfried,
a sponsor of the legislation. "The governor thinks if Medicare
is going to stop reimbursing the state, then he's prepared to
let low-income senior citizens go without their medication. I
think the state has a responsibility to step in rather than to
let that happen."
The
bill would have kept the safety net in place until the state health
commissioner declared the confusion surrounding implementation
of Part D over.
Assembly
overrides veto. By James M. Odato
Albany Times Union, February 7, 2006
ALBANY
-- The Democrat-led Assembly on Monday voted unanimously to override
Gov. George Pataki's veto of a bill to extend coverage for medications
while problems with a new Medicare program are worked out.
The
141-0 Assembly vote, in which GOP members sided against the Republican
governor, puts the ball in the Senate's court. Senate Majority
Leader Joseph L. Bruno said he will recommend an override when
Republicans meet privately today.
The
141-0 Assembly vote, in which GOP members sided against the Republican
governor, puts the ball in the Senate's court. Senate Majority
Leader Joseph L. Bruno said he will recommend an override when
Republicans meet privately today.
On
Friday, Pataki vetoed the Legislature's plan to make sure seniors
affected by the switch to Medicare D would get prescription coverage,
something that wasn't happening in many cases because of transition
problems for those also eligible for Medicaid.
Pataki's
act affected about 600,000 people. The governor said he and the
federal government had worked out a plan to make sure prescriptions
were filled, with the state picking up the cost if necessary,
at least through March 8.
But
legislators, mindful of their standing with elderly voters in
an election year, had pushed the bill as a way to give poor, elderly
people some certainty about being able to afford their medications.
The
bill's Senate sponsor and Health Committee chairman, Kemp Hannon,
said he was disappointed by Pataki's act and promised to take
steps to insure the coverage. Minority Leader David Paterson challenged
his colleagues to override, noting that Pataki's veto, coming
at 5:30 on a Friday while the governor was "off campaigning
in Iowa only adds insult to the injury he's inflicted."
Pataki
spokesman Kevin Quinn did not have an immediate comment.