Mental Health Association in New York State, Inc.
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Home >> Publications >> Friday Fax Archives >> April 9, 2004

Friday Fax from Albany

Date: April 9, 2004

To: Board Members, Affiliate Executive Directors, Interested Parties
From: Joseph A. Glazer, Esq., President/CEO
Phone: (518) 434-0439 ext. 20
Fax#: (518) 427-8676
E-Mail Address: mhapres@mhanys.org

Burdens of Schizophrenia, Barriers to Care

Experience Schizophrenia Through a Symptom Simulator -
The Virtual Hallucination Machine

Burdens of Schizophrenia, Barriers to Care is an educational program to provide a better understanding about what it is like to live with schizophrenia, the social and economic impact of the disorder, and the need to ensure continuing access to treatment options. Attendees will be invited to experience the kinds of visual and auditory hallucinations that are typical of schizophrenia through a symptom simulator with the Virtual Hallucination Machine. Wearing goggles and earphones created using advanced, virtual-reality technology, participants can see and hear the hallucinations that someone with schizophrenia may experience. The Virtual Hallucination Machine allows participants to control the stimulation, responding to visual and auditory markers.

Invited guest speakers include:

  • John P. Docherty, M.D. – Dr. Docherty is currently the Chief Executive Officer and President of Comprehensive NeuroScience, Inc. in White Plains, New York. Dr. Docherty will speak from his more than 25 years of experience in the behavioral healthcare field, discussing the nature of and the treatments available to those who suffer from schizophrenia.

  • Daniel Frey. Mr. Frey is the Editor-in-Chief of New York City Voices: A Consumer Journal for Mental Health Advocacy. Mr. Frey, also a nationally recognized spokesperson on schizophrenia, will share with attendees his experience of living with schizophrenia.

Date/Time: April 19, 2004. Presentations from 11:30 a.m.- 1 p.m. with access to the Virtual Hallucination Machines from 1 p.m.- 5 p.m. – Lunch will be provided.

Location: 711-A Legislative Office Building (LOB), Albany, New York

Schizophrenia is a serious disorder that affects how a person thinks, feels and acts, affecting about 1% of the world population. While no cure for schizophrenia exists, the 2.5 million Americans who live with this disease can lead productive and fulfilling lives with the proper services, medication and rehabilitation.


Burdens of Schizophrenia, Barriers to Care

Experience Schizophrenia Through a Symptom Simulator -
The Virtual Hallucination Machine

April 19, 2004
11:30 a.m.-1:30 p.m.
711-A Legislative Office Building
Albany, New York
Lunch will be provided

The Mental Health Association in New York State is dedicated to ensuring that all people who need it have access to effective mental health treatment. To better understand how this issue affects people with serious mental illness and their families, we invite you to experience first-hand the kinds of visual and auditory hallucinations that are typical of schizophrenia through the Virtual Hallucination Machine - a symptom simulator.

Join us to learn about what it is like to live with schizophrenia, the social and economic impact of the disorder, and the need to ensure continuing access to effective treatment options.

Speakers include:

  • John P. Docherty, M.D. - Chief Executive Officer and President, Comprehensive NeuroScience, Inc.
  • Daniel Frey - Editor-in-Chief, New York City Voices: A Consumer Journal for Mental Health Advocacy

The Virtual Hallucination Machines will be available to Legislators, legislative staff and the public to experience following the program from 1:30 p.m.-7 p.m.

Please RSVP
phone: (518) 434-0439 ext. 21
e-mail mseereiter@mhanys.org
fax: (518) 427-8676

Name: _______________________________________________________________

Organization:__________________________________________________________

Street: _______________________________________________________________

City: ____________________________ State:_________ Zip:___________________

Phone: _____________________________ Fax:______________________________

E-mail: _______________________________________________________________


In the News:

Drug list would hurt mental health patients. Editorial
Albany Times Union, April 5, 2004

How is it that we can justify sacrificing an individual's mental health in hopes of pressuring pharmaceuticals into lowering prescription drug prices ("Doctors wary of Medicaid drug list," March 15)?

The governor and legislators' consideration of lowering the costs of Medicaid by mandating that prescribers choose from a list of preferred drugs is shortsighted. People who are psychiatrically unstable are the highest users of crisis services, are seen most regularly in hospital emergency departments, are in and out of the hospital more frequently and have the greatest difficulty remaining employed.

Limiting the medications that prescribers can use in treatment will actually result in higher Medicaid costs, and that affects the cost passed on to taxpayers. What about the price paid by the mental health consumer?

The message being sent is that you can access the best treatment, but only if you can pay for it. I would ask the governor and each legislator to consider what they would want should a loved one experience a major mental illness.

Would they not want the best treatment available? Should this preferred drug list become reality, a consumer might experience a trial of medications before being able to use what a doctor's experience shows to be most effective but, because of cost, is not on the preferred list. This could cause someone with schizophrenia to continue to experience debilitating symptoms for much longer than he or she might ordinarily. That's a high price for a mental health consumer to pay.

TRACY PITCHER, CSW
Director, Family Resources
ClearView Center
Albany

 

Bill would benefit mental health care. Letter to the Editor
Poughkeepsie Journal
, April 8, 2004

I would like to thank our elected officials in Albany for their support of Timothy's Law. Timothy's Law will mandate health insurance companies to cover mental health expenses as they do any other medical expense.

Mental health parity is something that affects so many people. Mental wellness enables people to be productive members of society and helps promote strong, healthy families. Too many people don't seek treatment because of stigma and because insurance doesn't financially permit it. By supporting this bill, they have clearly sent the message that mental health is part of physical health. They're doing their part in trying to eliminate some of the stigma that burdens people with these issues.

I also encourage our elected officials to reinstate the mental health cuts to Gov. George Pataki's 2004 budget. In Dutchess County, many of the mental health programs that provide direct services to more than 2,000 of our least-represented group of people would be affected by these proposed cuts. These individuals have little voice.

Thankfully, programs like ours are there to help give them a sense of belonging and accomplishment, and a place for them to build on skills they have and discover skills they didn't know existed. In short, it gives them hope. These support centers are rarely visited by the press, not seen by many community members, but can't afford to be forgotten by our elected officials who make budgetary decision.

Andrew O'Grady, Director of Case Management
Mental Health Association, Poughkeepsie

 

Until next time, we remain,
Working to ensure available and accessible
mental health services for all New Yorkers